Associate Director, Patient Advocacy & Engagement - WEST jobs in United States
cer-icon
Apply on Employer Site
company-logo

ITF Therapeutics LLC · 11 hours ago

Associate Director, Patient Advocacy & Engagement - WEST

ITF Therapeutics LLC is seeking an experienced and passionate Associate Director of Patient Advocacy & Engagement to join their team. This role involves leading strategic regional patient advocacy engagement efforts for Duchenne Muscular Dystrophy and developing relationships with advocacy groups to improve the lives of patients. The position requires collaboration with internal teams and external partners, along with regular travel for engagement activities.

ManufacturingPharmaceuticalTherapeutics

Responsibilities

In partnership with and under the direction of the Head of Advocacy, create and execute an engagement and outreach plan for regional advocacy organizations
Participate in strategically significant regional advocacy groups, building awareness of ITF Therapeutics and developing strong collaborations among industry counterparts
Develop presentation content for in-person engagements
Gather crucial insights from the community to inform programs and materials
Provide regular ITF updates to patient groups
Represent the DMD patient voice in internal meetings and guide internal activities to help establish a patient-focused culture within ITF
Collaborate with other field colleagues to engage appropriately with the DMD community and share appropriate insights
Contributes to the development and delivery of educational presentations, materials, and resources to further conversation and address gaps in knowledge around DMD
Contribute to corporate communication efforts for DMD

Qualification

Patient advocacy experienceExperience in rare disordersCross-functional collaborationBi-lingual fluencyFDA regulationsSelf-starterPresentation skills

Required

8+ years of related and progressive experience in biotech and/or pharmaceutical patient advocacy
4+ years of relevant experience in the field, either regionally or nationally
Willingness and ability to travel, including overnight and weekend events

Preferred

Experience in rare or neurological disorders
Prior experience with DMD highly preferred
Bachelor or advanced degree in genetic counseling, nursing, public health, or social work
Bi-lingual fluency in English and Spanish
Understanding of FDA and EMA compliance regulations as they pertain to patient advocacy
Demonstrated history of cross-functional collaboration with sales medical and access teams, including ability to create and foster cross-departmental relationships
A self-starter who is comfortable leading field relations for a fast-moving startup

Benefits

Medical, Dental & Vision Insurance: Nationwide coverage with flexible plan options tailored to your needs
401k Company Match
100% Paid Bonding Leave: Dedicated time to support growing families
Disability & Life Insurance: Multiple coverage options to protect what matters most
Professional Development: Ongoing opportunities to grow your skills and career
Flexible Time Off Package: Recharge and refresh with generous paid time off
Additional perks to support your well-being

Company

ITF Therapeutics LLC

twittertwitter
company-logo
ITF Therapeutics is the US-based rare disease division of Italfarmaco S.p.A.