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ALS Therapy Development Institute · 1 day ago

ALS Clinical Trials & Drug Development Liaison

United States

Full-time

Remote

Mid Level

$35K/yr - $40K/yr

The ALS Therapy Development Institute (ALS TDI) is a leading non-profit biotechnology company dedicated to discovering and advancing effective treatments for amyotrophic lateral sclerosis (ALS). We are seeking a highly knowledgeable and mission-driven professional to survey and synthesize the ALS clinical trial landscape, engage directly with drug sponsors, and translate complex scientific information for various stakeholders.

BiotechnologyHealth CareMedical

Culture & Values

H1B Sponsor Likely

Responsibilities

Continuously monitor and evaluate the global ALS clinical trial and drug development landscape, focusing on clinical and late stage pre-clinical programs

Track trial designs, endpoints, enrollment criteria, timelines, and outcomes

Identify trends, gaps, and emerging therapeutic approaches relevant to ALS

Conference regularly with pharmaceutical and biotechnology sponsors, academic investigators, and clinical research programs

Develop and maintain professional relationships to support information exchange and collaboration

Represent the organization in meetings, briefings, and conferences related to ALS drug development

Educate internal teams on ALS clinical trials, therapeutic mechanisms, and regulatory developments

Translate technical and scientific information into clear, accurate, and accessible content for the ALS community, including patients, caregivers, and advocates

Take part in virtual meetings with families facing clinical trial decisions

Support presentations, briefings, webinars, and written materials tailored to diverse audiences

Monitor and review the ALS Trial Navigator to ensure accuracy, completeness, and timeliness

Collaborate with digital, communications, and scientific teams to maintain high-quality, trusted resources

Prepare summaries, landscape reports, and briefing documents for leadership and the ALS TDI Development Team

Maintain organized records of sponsor interactions, trial updates, and key insights

Qualification

Clinical trial designDrug developmentStakeholder engagementALS research experienceRegulatory pathways knowledgeCommunication skillsEmpathy

Required

Strong understanding of clinical trial design and drug development, preferably in neurodegenerative diseases or ALS

Demonstrated ability to communicate complex scientific information clearly to both technical and lay audiences

Experience engaging with external stakeholders such as biotech/pharma sponsors or academic researchers

Ability to convey empathy and warmth in conversations with patient community

Preferred

Direct experience with ALS research, clinical trials, or patient advocacy

Familiarity with regulatory pathways (FDA, EMA) and trial registries (e.g., ClinicalTrials.gov)

Company

ALS Therapy Development Institute

ALS Therapy Development Institute is dedicated to funding research to cure Amyotrophic lateral sclerosis disease.

Founded in 1999

Watertown, Massachusetts, USA

11-50 employees

http://www.als.net

H1B Sponsorship

ALS Therapy Development Institute has a track record of offering H1B sponsorships. Please note that this does not guarantee sponsorship for this specific role. Below presents additional info for your reference. (Data Powered by US Department of Labor)

Distribution of Different Job Fields Receiving Sponsorship

Represents job field similar to this job

Trends of Total Sponsorships

2025 (1)

2024 (2)

2022 (1)

Funding

Current Stage

Early Stage

Leadership Team

Jamie Heywood

Founder, Board Member, Former CEO & Chairman

Recent News

PR Newswire

Answer ALS Completes Release of Full Dataset and Integrates ALS TDI ARC Study Data into Neuromine

2025-11-03

FierceBiotech

Chinese CRO ChemPartner gets ready to debut new Boston research facility

2025-08-30