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National Organization for Rare Disorders · 3 weeks ago

Membership Program Manager

Washington, DC

Full-time

Onsite

Mid Level

3+ years exp

The National Organization for Rare Disorders (NORD) is the leading independent nonprofit organization representing all patients and families affected by rare diseases. The Membership Program Manager is responsible for managing educational and networking programs for patient advocacy organizations, enhancing member engagement, and providing high-quality customer service to members.

Health CareMedical

Responsibilities

Create and manage project plans to guide the development of new programs, trainings, and educational activities for our rare diseases non-profit organizational members and their leaders, including managing timelines and execution of deliverables

Manage membership program by providing a high level of customer service to members, processing membership applications and renewals and responding to inquiries and requests in a timely and professional manner

Manage the planning and execution of webinars and provide support to in-person membership meetings, including speaker identification and coordination, promotion, hosting and post-meeting recap and archival for members

Collaborate with internal and external subject matter experts to create informational/educational resources and support services to aid rare disease nonprofit leaders, Board Members and staff on a variety of topics including but not limited to nonprofit good governance, organizational capacity building, patient-focused drug development, rare disease research, and engagement with community stakeholders such as industry, FDA, NIH and others

Support new member prospecting

Represent NORD at events, in one-on-one meetings and other opportunities as needed, including conferences, meetings, seminars, patient education meetings, and others

Produce departmental reports, tracking outcomes for member outreach, and engagement

Update and maintain portions of NORD’s systems where Membership information is present such as the Website and the CRM

Support the Marketing and Communications Department in the organization’s efforts to engage with Members and promote participation in programs, services, and initiatives

Performs other duties and functions as assigned

Qualification

Nonprofit experienceMembership salesProject managementCRM proficiencyAnalytical skillsMicrosoft OfficeSalesforceCommunication skillsOrganizational skills

Required

Bachelor's degree in communications, public administration, public health or related concentration or combination of education/experience

Minimum 3-5 years of experience in nonprofit, health or science sectors, with a preference for candidates with experience working with patient organizations. Rare disease experience a plus

Experience with marketing, communication, promotions and/or sales (membership sales preferred)

High level of individual initiative and the ability to work with limited supervision

Solutions-oriented, but with an ability to work collaboratively across teams to resolve challenges

Ability to manage a portfolio of relationships with diverse stakeholders, including patient advocates, nonprofit executives and researchers

Strong analytical and organizational skills

Excellent writing and communication skills

Ability to consistently meet deadlines while maintaining accuracy and attention to detail

Ability to communicate with a variety of clientele and audiences such as patients, families, Executive Directors, government officials, researchers, medical professionals and reporters

Ability to promote membership, programs and services to new members and business associates

Excellent technical skills including Microsoft Office & Teams, Salesforce or other CRM, FR50 or other development software

Preferred

Experience working with patient organizations

Rare disease experience

Benefits

Competitive compensation and benefits package

Flexible telecommuting options

Company

National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them.

Founded in 1983

Danbury, Connecticut, USA

51-200 employees